WELCOME TO CHONDROSARCOMA SUPPORT
Whether you are newly diagnosed or have already been through it all, the Chondrosarcoma Support Group is where you can find information and share common interests with others who understand the uniqueness and experiences of the diagnosis.
Joining our group is simple - first, read the rules below this message. Then, register for an account at our forum by contacting the administrator of the group in person by email or phone call as stated below.
No matter where your chondrosarcoma is located, no matter what type of chondrosarcoma you have, there is someone in the group who has the same. You are not alone!
Please read the following rules before contacting the administrator.
We want your experience at the Chondrosarcoma Support Group to be enjoyable, meaningful, and safe. So that the forum remains a great place for all of us to share, please abide by the following rules.
1. All members agree to post an introductory message in the forum. If you are here for information and/or support this is the first step. Non participation will result in termination of membership.
2. Respect everyone and be responsible.
Comments of a religious nature are not permitted. Respecting that we come from different backgrounds, experiences, cultures and religions from all over the world is of prime importance.
3. Politics, use of foul language or making sexual comments is not permitted. Doing so will result in termination of membership.
4. Selling services or products; asking for donations for yourself or any agency is not permitted. If your post is deemed objectionable, forum moderators reserve the right to edit or delete it, and can do so without notification. Please remember that you are responsible for the contents of your posts.
5. It is okay to share experiences but do not seek or give medical advice.
You are responsible to consult your physician in every detail of your treatment or care. Everyone is welcome to share their personal experiences relating to their treatments, side effects, etc., but do not insist on giving direct medical advice. Your physician is the only one qualified to give you legal medical advice.
6. Do not promote scientifically unsubstantiated "miracle cures"
Alternatives to appropriate medical treatment are not acceptable. There is a fine line with regards to complementary and alternative medicines, many of which are valuable for cancer patients. Complementary means it is included with your care. Alternative means you are not receiving standard medical treatment. If your preference is for unscientific medical care you do not belong here.
7. Keep your account current.
Because we are an active support community, accounts that have been inactive for three months, those who never visit the site after registering, those who do not post and those without a valid e-mail address will be removed. If you feel your membership was discontinued unnecessarily, please feel free to join the Facebook Chondrosarcoma Community: https://www.facebook.com/groups/Chondrosarcoma.Support/
8. The moderators decisions are final.
The leadership reserves the right to delete any message at any time for any reason or no reason at all. The administrator reserves the right to suspend a membership if he or she believes that a member's messages have a negative impact on others, or if the member's posts are consistently out of the scope of this forum.
Rules are subject to change at any time as needed. Views expressed in postings are those of the individual and are not necessarily those of the Chondrosarcoma Support Group. We cannot guarantee the accuracy or validity of any message. These message boards are not meant as a substitute for the advice of a doctor, therapist, or other trained professional.
Ready to Join Us?
By registering you understand and agree that you have read the rules and will abide by them.
To begin your registration for the Chondrosarcoma Support Group, please contact the site owner, Elizabeth Munroz, at the following contact information. ( chondrosarcoma_care AT yahoo DOT com ) or call 831-786-9795 after 1 PM Pacific Standard Time.
Your membership will be approved as soon as possible, usually within 24 hours of your email contact.
A Few Useful Resources
Private Chondrosarcoma Facebook Group
Chondrosarcoma in the Sarcoma Learning Center
Mesenchymal Chondrosarcoma Support
Mesenchymal Chondrosarcoma in the Sarcoma Learning Center